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Dealing with a Child with severe Dyslexia - 9/1/2008 2:22:13 PM
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FAWIHTT
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Joined: 2/14/2008
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My son is very smart when they gave him an IQ test he tested right in the middle of the Genius level and tested with severe dyslexia at the same time. He is now in the forth grade and is still having trouble learning to read. They said, if his reading was where it should be then he would actually need to be in Gifted and Talented classes so he does have the pesonality of a gifted and talented child. He gets so frustrated about not getting the reading. To where he is thinking he doesn't like reading but that's not the case he is just frustrated. Does anyone have any advice at how I can help him. Oh, he is 9 yo.
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God Has Blessed us to make us a blessing. Genesis 12:2
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RE: Dealing with a Child with severe Dyslexia - 9/2/2008 10:08:21 AM
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Row1
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how did they test for dyslexia?
dyslexia cannot be determined directly from an IQ test.
what type of professional interpreted the IQ results?
I ask because what you should do depends on whether you have a decent assessment at this point, or whether the next step will be to get a decent assessment.
Academic-type assessments aren't necessarily designed to assess the various dyslexias. If it was a gifted-and-talented assessment, it generally might not include the specific tests to determine a dyslexia.
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RE: Dealing with a Child with severe Dyslexia - 9/3/2008 8:22:06 AM
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FAWIHTT
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No he went through several tests one was just a plan IQ test and one was dyslexia and one was for Irlen Syndrome. They found out abot Him being G&T through the IQ test. but they was all different.
_____________________________
God Has Blessed us to make us a blessing. Genesis 12:2
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RE: Dealing with a Child with severe Dyslexia - 9/3/2008 10:36:07 AM
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MarmotMom
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We purchased the Gift of Dyslexia. I am not sure how to post a link, but searching for the book will lead you to the website. We used the book as a guide for exercises to do with our child and we were very pleased. You are welcome to pm me, I am not sure about the rules for posting too much information about other websites and programs.
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RE: Dealing with a Child with severe Dyslexia - 9/3/2008 2:28:11 PM
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Row1
Posts: 250
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Here is my best advice for how to help him, for what it is worth:
TWo things:
1.
You need to join up with other parents of children who also have any of the various dyslexias. Learn from them.
2.
I hate to tell ya this, but you will have to become your own expert on dyslexia, and you (and your husband) will have to become the main people figuring out how everything is going to work together to provide the best help for your son. It would be great if the school, or some doctor, would tell you everything to do, what help is available locally, etc., and if they would just do everything and make sure your son's education and help does not slip thruogh the cracks. But they won't.
You will have to be his main advocate all the way. And you can't do this without being an expert yourself. How do you know what to ask for, and what to expect? Right now, you have no idea. So, this is how the other parents, and book recommendations will help.
Maybe start with the international dyslexia association
http://www.interdys.org/
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RE: Dealing with a Child with severe Dyslexia - 9/3/2008 2:32:54 PM
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Row1
Posts: 250
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what type of professional interpreted the results?
what did they recommend you to do?
does the school system have this assessment?
what can they offer a child with the specific type of dyslexia that your son has?
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RE: Dealing with a Child with severe Dyslexia - 9/5/2008 12:34:35 PM
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FAWIHTT
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we just moved to a different state and different school and i don't think this one has anything so I am working with him and trying to help him not get frustrated. I am working and so it's hard. I am looking into working from home because he really needs me at home. My husband is receiving disablilty but is looking for a temp job to supplement the income.
_____________________________
God Has Blessed us to make us a blessing. Genesis 12:2
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RE: Dealing with a Child with severe Dyslexia - 9/5/2008 12:35:54 PM
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FAWIHTT
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Joined: 2/14/2008
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Thanks for the link I am going to look into it and also I am going to see what I need to do to get him retested with a doctor and do research myself.
_____________________________
God Has Blessed us to make us a blessing. Genesis 12:2
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RE: Dealing with a Child with severe Dyslexia - 9/6/2008 2:55:57 PM
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Row1
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i ask abt the eval because a decent eval should be totally great for at least a year, and acceptable up to 2 years - after that, normally, a kid should be retested because they develop, and can grow out of these disabilities.
the most recent eval should be great to inform the new school how to help!!!!!
it should specify the type of dyslexia. the school should have someone somewhere who can figure out what additional help or services your child needs BASED ON THE EVAL ALREADY DONE!!!
ideally, the eval should give realistic things to do - both for the parent to do like at home reading, for example spelling words while reading easy material, and things for the school to do.
this is really why i ask who did the eval. an eval is almost worthless if ALL it does is provides a label. the label at least, though , can provide a school enough info for them to use teior knowledge and resources to help. However, some evals are too vague - if the conclusions was "your son has a dyslexia," first that is professionally insufficient (there are different kinds of dyslexia like some that affect reading, some math, etc.), and 2nd, it provides no helpful info (like: your son reverses these letters, so practice this simple exercise with him three times a week).
you get a test so you NOW have to go get another test? that makes no sense to me. but often, crazy things like this happen in school systems.
so, i would 1. get hold of the report for yourself, or at least get the tester to send a copy to school. 2. you and school each figure out what to DO. Enough testing - you can test the kid til everyone is worn out, and it won't make a bit of difference until you translate TESTING info into ACTION.
gosh, this upsets me - i hear of people getting into this cycle of testing testing testing. Just start helping the kid.
Also - originally, I almost asked about what difficulties are going on in your life / your child's life. It sounds like you have a modest, limited income, and you have recently moved.
This makes kids have more difficulty performing challenging academic things. So, I would work to make home life comfortable and reliable. Stable meal times. Stable bed times. Stable special time. stable low-stress reading time. Stable homework time. Make some friends in the area to start to feel like the area is 'home.'
Depending upon your husband's disability, he should be able to provide a lot of this if you have to work. There is a big role for people who cannot work because of disabilites: helping run the home!!!
Before our culture shattered the extended family (now we are working on shattering the nuclear family, also), the family members who COULD NOT WORK were the ones who babysat, took kids to doc appointment, were at the home for the plumber visit, gardened, cooked meals, etc. This includes people with disabilites, including mental health disabilites including depression, ptsd, schizophrenia. Disabled people have a role in the family.
So, you or your husband can work on helping make the new home a stable home. Plus carry out some modest things to address the specific type of dyslexia your child has.
Sorry for such a long post. I wrote this off the top of my head in a few minutes, but all of my info is exactly what ANYONE providing a learning assessment SHOULD tell you. It doesn't happen enough, though, and that makes me mad - it leaves everyday parents who need to learn all of this with NO benefit following the testing. I just don't understand, but your story is not unusual. --that ties in with my opinion that you and your husband will need to be the LEADING advocates and get knowledgeable, cuz the schools, the testers, the docs, etc. will NOT do things like they should. Sad, but all-too-true.
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RE: Dealing with a Child with severe Dyslexia - 9/6/2008 3:24:59 PM
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FAWIHTT
Posts: 80
Joined: 2/14/2008
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Thank You so much for everything you said, I am doing research and also I am going to the school on Monday to get the test that he was given.
_____________________________
God Has Blessed us to make us a blessing. Genesis 12:2
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