RE: Parents with Children of special/high needs children support thread
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RE: Parents with Children of special/high needs childre... - 10/7/2008 8:51:32 AM
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iampiper13
Posts: 57
Joined: 5/31/2008
From: Maryland
Status: online
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We're still fighting the cold, we went yesterday to our family doc, who thank God listens to us, Callie is now on an anti-biotic. We haven't started her Prednisolone yet but we have it ready. Shes a real trooper, I don't know if I could do all that she puts up with. We're doing everything we can to keep her out of the hospital although at times we do kinda miss being there which may sound strange but its kinda like being at a second home. lol
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God Bless
Steve
Psalms 138:3 CEV When I asked for your help, you answered my prayer and gave me courage.
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RE: Parents with Children of special/high needs childre... - 10/7/2008 2:32:44 PM
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ladyingrace1979
Posts: 356
Joined: 3/14/2008
From: Fresno CA
Status: online
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Dear Father,
We thank you that Callie's doctor listened and gave good care to Callie. We thank you for her strength and courage and how much she teaches us.
Please continue to bless them and strengthen Callie's respiratory system.
In Jesus name,
Amen.
I'll be praying for you,
In His grace,
Kim Q
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RE: Parents with Children of special/high needs childre... - 10/8/2008 8:57:30 AM
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iampiper13
Posts: 57
Joined: 5/31/2008
From: Maryland
Status: online
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Thank you all for your Prayers, shes still holding her own, as we have learned after many hospital stays a cold last 10 days. Our biggest challenge is to keep it up in her sinuses and out of her lungs. So far it has stayed in her sinuses 
On another note my wife found a Hoyer lift and a hospital bed for $150!
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God Bless
Steve
Psalms 138:3 CEV When I asked for your help, you answered my prayer and gave me courage.
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RE: Parents with Children of special/high needs childre... - 10/8/2008 4:58:01 PM
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ladyingrace1979
Posts: 356
Joined: 3/14/2008
From: Fresno CA
Status: online
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Hi all,
First thing I wanted to say is that I'm so glad I found this thread. I love being able to post and you all understand.
Second, I had posted about going to a psychologist for one of my twins, Alyssa. She has been having problems in school and just not participating verbally. This actually had started last year but had been getting better. Then we changed teachers and it came back badly. The psychologist appointment today was just me, DH and the psychologist. I really like her. Her grandson has autism so she understands the parents perspective. She also gets the professionals perspective too so it is a really balanced approach. She believes that Alyssa's problem is related to anxiety and fear of not doing well. I can see this. Since the girls don't have strong language skills it's hard for Alyssa to tell us what is wrong. The teacher sees this as Alyssa being defiant. So we are going to have to deal with that issue. I really don't like this teacher so I'm going to have DH talk to her. So Alyssa will start seeing her once a week to start and then once every two weeks once a good relationship has been established.
I'm feeling a little overwhelmed right now. I just thought we got out of the therapy world (Ot, Pt, St) outside of school. But I know it is necessary and we'll adjust to a new normal. It doesn't help that DH is having problems with his MS. I'm just a bit tired of all the "stuff" we deal with. Anyway, life goes on.
Thanks for listening,
Kim Q
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RE: Parents with Children of special/high needs childre... - 10/8/2008 6:29:10 PM
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myka
Posts: 797
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(((((Kim)))))
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RE: Parents with Children of special/high needs childre... - 10/10/2008 5:21:52 PM
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nicole6598
Posts: 4102
Joined: 11/3/2006
From: Australia
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Kim that's hard because its not actually her fault, that's more something the teacher needs to address. I had alot of young children come to me from different schools who had just been shattered by their previous teachers. Their confidence to try something was so low. It can happen with parents who are too pushy and critical too. Are you going to address this with her teacher?
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Proud Aussie, Wife, Mother, Woman!
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RE: Parents with Children of special/high needs childre... - 10/10/2008 7:15:01 PM
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ladyingrace1979
Posts: 356
Joined: 3/14/2008
From: Fresno CA
Status: online
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quote:
ORIGINAL: nicole6598
Kim that's hard because its not actually her fault, that's more something the teacher needs to address. I had alot of young children come to me from different schools who had just been shattered by their previous teachers. Their confidence to try something was so low. It can happen with parents who are too pushy and critical too. Are you going to address this with her teacher?
Oh yes, actually my dh will. I'm not very happy with this teacher and I tend not to be as diplomatic as I should. I will be the one at the IEP so I am sure it will come up then as well.
Kim Q
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RE: Parents with Children of special/high needs childre... - 10/11/2008 12:32:23 PM
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bennettsh
Posts: 1
Joined: 10/11/2008
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Hi, My name is Sharon and I have two wonderful children ages 12 & 14 that my husband and I adopted as infants through open adoptions from two separate birth families. Although we don't stay in contact much with the birth families anymore, the birth family genetics sure seem to play and active part in our lives. We have survived many battles and issues that have come along. Presently, we are coming to realize that the challenging behavior of our 12 year old son may have been mis-diagnosed all these years as Fetal Alcohol Syndrome, Anxiety Disorder, and ADHD. We are now researching info on Asperger's Syndrome and are seeing a very distinct link between our son and the discriptions in the information we have read. It is all making much more sense now.
I hope someone would have some words of encouragement for us. Matt is struggling horribly in a new school this year. We are getting lots of support from his teachers and support staff. The school's SET Team is going to start observations and testing.
Please pray that the main focus will be to help our son succeed socially and learn how to overcome his anxieties. He is an awsome kid and we love him so very much.
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RE: Parents with Children of special/high needs childre... - 10/11/2008 2:47:20 PM
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flyboy2610
Posts: 92
Joined: 5/10/2005
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I will be praying for you. It can be very wearing to have a special needs child.
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If the women don't find you handsome, they should at least find you handy.
Red Green
If you're going to live like there's no hell..... you'd better be right.
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RE: Parents with Children of special/high needs childre... - 10/17/2008 9:10:15 PM
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iampiper13
Posts: 57
Joined: 5/31/2008
From: Maryland
Status: online
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Update on Callie, it seems that we got on this cold in time and it stayed in her sinuses, she returned to school on Monday and is doing great! Thank you all for your Prayers.
_____________________________
God Bless
Steve
Psalms 138:3 CEV When I asked for your help, you answered my prayer and gave me courage.
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RE: Parents with Children of special/high needs childre... - 10/28/2008 10:20:29 PM
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Fledgling
Posts: 71
Joined: 8/11/2008
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quote:
Hi, My name is Sharon and I have two wonderful children ages 12 & 14 that my husband and I adopted as infants through open adoptions from two separate birth families. Although we don't stay in contact much with the birth families anymore, the birth family genetics sure seem to play and active part in our lives. We have survived many battles and issues that have come along. Presently, we are coming to realize that the challenging behavior of our 12 year old son may have been mis-diagnosed all these years as Fetal Alcohol Syndrome, Anxiety Disorder, and ADHD. We are now researching info on Asperger's Syndrome and are seeing a very distinct link between our son and the discriptions in the information we have read. It is all making much more sense now.
Hi Sharon,
I have a child with Asperger's syndrome. He is very intelligent that's the really great part.. the scary part is that he is very socially naive. A child with Asperger's syndrome has great potential.. I have heard silicon valley has many more than most places because they can be so focused and intelligent that they make great computer scientists. The hard part in raising them is helping them find their niche in society. Special needs children can really be a blessing, albeit a challenge.. but don't those two things so often go together. I am a single mom with two special needs children. One with Asperger's syndrome and one with Pachygyria, a rare form of microcephally. My Asperger's child is now 18 and this has been the most challenging time yet.
My child was mis-diagnosed for several years before they determined it was Asperger's syndrome...
God Bless you and your family.. If you want to chat with me more about the subject feel free to contact me :-)
Oh something that is helpful to me that others might find helpful..
I have been in contact with the DMRS. They provide special job training and other services such as housing for special needs adults... they can also provide financial aid for special needs families.. My son is only 11 but I contacted them last week because I was informed that the waiting list to receive services has a 6,000+ person waiting list in TN and longer in other states.. so you need to get on it when your children are very young.
< Message edited by Fledgling -- 10/29/2008 7:52:59 AM >
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RE: Parents with Children of special/high needs childre... - 10/28/2008 10:48:21 PM
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Auben
Posts: 1611
Joined: 4/13/2005
From: Where pines tower and cranberries float
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Hello everyone. Thinking of you.
Luke tried 2 new foods (chicken and scrambled eggs) this week so it's been a good week.
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Tamara
~Everywhere is walking distance if you have the time~
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RE: Parents with Children of special/high needs childre... - 10/29/2008 7:55:01 AM
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Fledgling
Posts: 71
Joined: 8/11/2008
Status: offline
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Thats great :-) I am happy for you.
God Bless You, Luke and Your Family :-)
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